Cough-Specific Quality of Life Questionnaires

A cough can be very distressing and have a significant effect on many children and their families.

As young children are unable to verbally express themselves adequately, it is standard practice for parents to be proxy assessors of their young child ’s medical condition. Also, parents/carers are themselves affected by their child’s medical condition and thus the parents’ own QoL is relevant. Thus, QoL measures used in paediatrics concern the parents/carers themselves.

The use of Quality of Life (QoL) tools are now considered essential for high quality clinical research and intervention. These tools help healthcare professionals reliably measure and evaluate the efficacy of their intervention. Unfortunately, there were no valid and reliable measures available to pediatricians – until now. 

Researchers from the University of Queensland in collaboration with healthcare professionals have developed three fully validated Parent Cough-Specific Quality of Life (PC-QoL) questionnaires to assist health care professionals during their research and clinical care:

PC-QoL-27: the full-scale questionnaire for parents of children with chronic cough,

PC-QoL-8: the short form of PC-QOL-27 as an 8-item questionnaire, and

PAC-QoL: the Parent-proxy Children’s Acute Cough-specific QoL questionnaire. 

The questionnaires are the first fully validated children’s cough-specific quality of life questionnaire designed for pediatricians and parents of children with chronic and acute cough. They also align with the World Health Organization domains of psychological, physical and social functioning.

Not only are the questionnaires reliable and valid, but they are also sensitive to change over time. This means that they measure the impact of the child’s cough on parents’ and caregivers’ wellbeing and daily life while also mirroring the changes in the cough severity.

Purchasing Parent Cough-Specific Quality of Life (PC-QoL) 

The Parent Cough-Specific Quality of Life is available now for purchase as a licensed downloadable file. License terms and conditions do apply, so please read these carefully on the product page. Payment is via Stripe.

Commercial Licensees can use the PC-QOL for:

• Clinical intervention/treatment (Not applicable for Non-Commercial Licensees)
• Use by individual students and faculty in conducting academic and scholarly research, academic publishing, or course preparation.
• Use as required course readings or viewings.
• Distribution of materials to students in a class or posting or scanning materials to a Learning Management System Website (“Learning Management System Website” means a password-protected website or other system maintained by an instructor for use by students enrolled in a particular course).
• Academic presentations or conferences (must be accompanied by reference to the Copyright Owner) and with reference that use the PC-QOL is not permitted without entering into a license)

Non-Commercial Iicensees are not permitted to use the PC-QOL for clinical intervention/treatment. Non-Commercial licensees also cannot publish, share, distribute, modify, sublicense or sell the CC- QoL materials. They are copyright protected.

Application instructions

To apply for a license, complete all required fields and proceed to the checkout.

Select the Parent Cough-Specific Quality of Life (PC-QoL) you wish to obtain.

If your application is successful, you will receive:

• PC-QoL-27: the full-scale questionnaire for parents of children with chronic cough,
• PC-QoL-8: the short form of PC-QOL-27 as an 8-item questionnaire, or
• PAC-QoL: the Parent-proxy Children’s Acute Cough-specific QoL questionnaire.

• Development of a Parent Proxy Quality of Life Chronic Cough-Specific Questionnaire
• Validation of a parent-proxy quality of life questionnaire for paediatric chronic cough (PC-QoL)

Purchasing the CC-QoL

The CC-QoL is available now for purchase as a licensed downloadable file. License terms and conditions do apply, so please read these carefully on the product page. Payment is via credit card only.

Commercial Licensees can use the CC-QoL for:

Clinical intervention/treatment

Use by individual students and faculty in conducting academic and scholarly research, academic publishing, or course preparation.

Use as required course readings or viewings.

Distribution of materials to students in a class or posting or scanning materials to a Learning Management System Website (“Learning Management System Website” means a password-protected website or other system maintained by an instructor for use by students enrolled in a particular course).

Academic presentations or conferences (must be accompanied by reference to the Copyright Owner) and with reference that use the CC-QoL is not permitted without entering into a license)

Pricing:

The CC-QoL is priced based on your estimated number of uses during the 12-month license period.

$700 for 100 uses

$2,100 for 500 uses

$3,500 for 1,000 uses

Pricing is in Australian Dollars and is exclusive of GST.

Purchase Instructions:

To purchase a commercial use license, complete all required fields and proceed to the checkout. When you purchase a license, you will be charged based on your intended number of uses of the CC-QOL during a 12 month (annual period). Should you wish to renew your license after the initial 12-month license period, you can simply come back and renew through the UniQuest e-shop.

Upon receipt of your credit card payment, you will receive the following files for download:

CC-QoL: Child cough-specific quality of life questionnaire

Academic publications

• Newcombe PA, Sheffield JK, Petsky HL, Marchant JM, Willis C, Chang AB. A child chronic cough-specific quality of life measure: development and validation. Thorax. 2016 Aug;71(8):695-700. doi: 10.1136/thoraxjnl-2015-207473. Epub 2016 Feb 3. PMID: 26842959